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The Spoon Theory
I can’t post the entire Spoon Theory on my blog but I highly recommend you go read it. Especially if you think you know what you are talking about when it comes to my illness. The girl in this story...
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New Opinions
We felt like we needed a new opinion and an advocate so over the river and through the woods to grandmother’s house we went. We actually did go to my grandparents but before that we stopped at this new...
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A stubborn kings advise…
“The quickest way to bore someone is to actually tell them how you are feeling.” ~ Grandpa Hughes
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Insomniac retreats into hibernation
I’ve been really bad at posting lately but its only because I’ve been sleeping more and when I’m not sleeping I surprisingly have energy to like almost be a normal person. Maybe it’s because I am...
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Grateful days
My days have been better lately (thank god), I am still having some issues with my new medications but we are working on that. Anyway, I just wanted to say that for those family and friends that have...
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Hockey Expo Video
I blame this video for my lack of posting lately but its finally finished. The video shows how much Jack has improved since he’s been hurt. I started at the beginning of his story and ended with the...
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Trying to keep it together
I’ve learned this week that lyme can turn a great day around pretty quick. My life is on such a day to day basis, sometimes hour to hour… it’s crazy! The last two-ish days have been filled with lots of...
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Always a light in the dark
“You do not have to sit outside in the dark. If, however, you want to look at the stars, you will find that darkness is necessary. But the stars neither require nor demand it.” ~ Annie Dillard
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Undeniable
“The answer is that there is no good answer. So as parents, as doctors, as judges, and as a society, we fumble through and make decisions that allow us to sleep at night–because morals are more...
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11 months later…
11 months on antibiotics and I’m finally done with them! Well, for now at least…. I don’t know if treatment ever REALLY ends with lyme disease. I have been off antibiotics for two weeks now and am...
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